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Document Typology: Research
Methodology addressed by the publication:Narrative medicine
Title of document: Narrative Research methods in palliative care contexts: two case studies
Name of author(s): Carol Thomas, Joanne Reeve, Amanda Bingley, Janice Brown, Sheila Payne, Tom Lynch
Name of publisher: Journal of pain and symptom management
Language of the publication: English
Language of the review: English
Narrative methods have played a minor role in research with dying patients to date, and
deserve to be more widely understood. This article illustrates the utility and value of these
methods through the narrative analysis of semi-structured interview data gathered in a series of
interviews with two terminally ill cancer patients and their spouses. The methods and findings
associated with these two case studies are outlined and discussed. The authors’ contention is
that an analytical focus on the naturalistic storytelling of patients and informal carers can
throw new light on individuals’ perceived illness states and symptoms, care-related needs,
behaviors, and desires. In addition, the juxtaposition of two cases that share a number of
markers of risk and need at the end of life illustrates how the narrative analysis of patients’
experiential accounts can assist in uncovering important distinctions between cases that are of
relevance to care management.
Reviewer's comments on the document:
we see that the narrative analysis of the interview data in these two case studies offers an innovative and clinically informative way of accessing the personal worlds and perspectives of patients and carers in end-of-lfe scenarios.
Where to find it: no pdf

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