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Document Typology: Newspaper / Magazine article
Methodology addressed by the publication:
Title of document: Los cuidados paliativos: un modelo de atención integral al niño gravemente enfermo y a su familia
Name of author(s): M. Salas Arrambidea, O. Gabaldón Pocb, J.L. Mayoral Miraveteb,E. González Pérez-Yarzac e I. Amayra Caro
Name of publisher: An Pediatr.
Language of the publication: Spanish
Language of the review: English
Summary:
"The present article reviews aspects unique to pediatric
palliative care: the attitudes of medical staff toward pediatric
death and life-threatening conditions, distinct patterns
of pediatric deaths, the causes of suffering in children
with life-threatening conditions and their families, and the
features that make palliative care a challenge for children,
families, medical staff and society. Concepts of pediatric
palliative care and various approaches are described. In
addition, Universal Principles of Pediatric Palliative Care
are presented. Special attention is paid to approaches that
start palliative care at diagnosis of a life-threatening conditions,
do not require a short-term life prognosis and do
not exclude curative or life-prolonging therapies since
these approaches can benefit both children who survive
life-threatening conditions and those who die, as well as
their families. The need for certain changes through education
and research is proposed to improve the quality of
life of children and families who currently suffer, satisfaction
and cohesion among medical staff, and healthcare
quality."
Reviewer's comments on the document:
It is a fiel less explored than paliative care for elder people.
In this case it is very important to have a code to act with very ill children and their families. It is specially important having into account the fact that those children can be sick for very long periods of time. So it become vital to make their lives and their familie´s as easy as possible not only in a sanitary sense but also in a social and communicative way. And to serve this purpose is vital to design flexible protocols of action adaptables to each and single case.
Where to find it:

Anales de Pediatria (Barc) 2004;61(4):330-5

ISSN: 1695-4033

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