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Document Typology: Book
Methodology addressed by the publication:Narrative medicine
Title of document: The tales corner. Take a deep breath. Stories about cystic fibrosis and transplantation.
Name of author(s): Autori Vari
Name of publisher: Casa Editrice Vicolo del Pavone
Language of the publication: Italian
Language of the review: English
Summary:
"The idea of the tales corner" derives from two pediatricians working at the Regina Margherita Turin hospital. They have been dealing with patients with rare, chronic and complex diseases that called the clinician’s attention to a consideration that goes beyond the narrow limits of biomedicine including other disciplines in the social, psychological, anthropological and bioethical philosophy fields. From here the reflection becomes narrative, and the narrative is invested with meanings, it covers topics that are rarely considered or analyzed and understood in all their complexity, maybe for fear or lack of constantly and concretely facing the critical topics such as for example the terminal phase of the disease, being the core of the present volume. It is crucial thinking about the idea of death as the only possible conclusion of that particular disease history, even when it begins to take shape in that patient, in his/her family and in the operators who know them.
This idea springs from the lines of “Take a deep breath” whose narration is consecrated to some tales related to cystic fibrosis, a chronic and complex pathology that, in its traditional form, involves a framework of chronic breathing insufficiency which is responsible for death in young adults. And here is the idea of a rebirth, of transplantation and of curing an incurable disease. But what does Antonio - one of the protagonists of the book – think, what does he wish for and what does he know about the tragic existential situation he was thrown into? And how do his parents and health care operator live this experience , what do they think and how they experience this issue, what do they say and what they do to preserve and take care of the young patient?
Reviewer's comments on the document:
The book therefore tries to illustrate the deep clinical, psychological, relational, ethical and existential dynamics linked to cystic fibrosis and transplantation in childhood and in adolescence. Just as in the previous volumes, published with two Bioethics briefs. It is an interdisciplinary journal dated 2010 and the stories told are “made up” by the authors even though they refer to real clinical cases. According to the intention to spread that characterize these publications, the narrative style is quite simple. (extract from the text)
Where to find it: no pdf

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