Lifelong Learning Programme

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Patients and relatives

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Patients and Relatives involved



Name of the patient : Liliana Skoneczna

Description of the disease or disability : Niedowład czterokończynowy po przebytej w dzieciństwie chorobie Heinego-Medina. Porusza się na wózku inwalidzkim od 20 roku życia. Porażenie strun głosowych, zapalenie śluzówki żołądka. / Patient with limb paresis (in childhood she was suffering from Heine-Medin disease). She uses a wheelchair since she was 20.

Onset of the disease : 1980

Age: 50

Name of the relative : Relative/family member

Description of eventual training courses attended on home care assistance: ---

Years of assistance to the patient: 32

Gender: Female

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